when it comes to finding a solution to your kids problems. (Sorry this is long).
As some of you may have seen I posted a while ago about my baby sons tongue tie (thanks to those who replied), I had been having dramas with feeding and he was crying all the time (not just crying but hours of inconsolable screams) he was barely sleeping at all.
I was told various things from nurses, doctors and others from that I should only drink bottled water, eat organic food with no dairy or wheat to there is nothing you can do just put up with it to I wasn't attaching him correctly, feeding him properly that I was mistaking wind for hungar. It is probably only that my mother is a midwife (although she doesn't live nearby) and her saying this is not normal and she is pushy (lol) that I kept on pushing to find a solution (that and I was going crazy seeing my son so upset and being seriously sleep deprived myself 
).
I decided to get his tongue tie fixed and finally found someone willing to do it (since its frowned upon here) and we have been seeing a speech pathologist regarding his tongue and swallowing action and are using a special variable flow bottle she recommended. Well OMG what a difference!!! he is now so much happier doesn't cry much at all, is smiling and making sounds and is sleeping a lot more 
. I now believe that it was his tongue tie and swallowing action that were causing him to gulp in air which was causing wind and tummy pain which was also keeping him awake. If I hadn't kept pushing for an answer I probably wouldn't have seen this other much happier side to my little boy.
Oh Ozcake, You poor thing! What a trying time that must have been!
Good on you for persevering and getting the right solution. My MIL tells me stories about my SIL who was tongue tied as a baby and she screamed all the time too!
I hope you get to enjoy the wonderful times coming with your happy baby!! 
Good for you!!!
I learned when my first baby was 2 years old that I was, and always would be, her voice. Her biggest advocate. I was 22 when I had her, and did not look like the happily married woman that I was-I still looked like a kid. Anyway, she contracted whooping cough (due to a bad reaction with her initial DTP shot, she completed her vaccination schedule WITHOUT the pertussis part of the vaccine). She would cough so hard that she would choke and turn blue. No one...NO ONE believed me. I remember one nurse looking at me in disgust and saying, "MAAM, I have HEARD whooping cough and that is NOT what your child has"! I finally pitched such a hissy fit that she was tested...and found positive. Then of course, she had to be treated, my hubby and I given preventative treatment, and the state's center for disease control had to be notified. Also, she had to be out of daycare for two months (I was finishing my college degree at the time-thankfully I found other care for her). Of course, this was AFTER I had been told I was over-reacting, and she had exposed many, many people.
I learned then and there to go with my gut.
Thanks everyone for the replies. Lisa I'm so sorry to hear your little girl had to go through all that and I hope she is well now (is she the gorgeous baby pictured in your avatar?)
One of the reasons I wanted to post about this topic was that I wanted other mums who might be getting fobbed off or even just don't feel right about advice or information they are being given to not be afraid to stand firm and keep trying to get a solution - if you have explored all options and still nothing can be done at least you know you have tried everything and if by exploring those options you can get a solution to a problem and get appropriate treatment that can make things better for your child what a difference it can make.
ozcake, the whooping cough was with my first child, who is now 14! The gorgeous baby is my 4th and last. She is two now! I have that pic in a big 8X10 hanging on my wall.
It's funny...a friend and I were talking about this very topic yesterday. She has a 3.5 year old with some developmental delays, and she had to really push to get help for him, too. At one year, he was not sitting up, and the doctor said to not worry about it!!! He also had some speech delays. At age three he had the verbal skills of a baby. After she really pushed for some help, she received it, and he is doing very well. So well, in fact, that I never even knew he had any delays!
Always remember "You are your child's best advocate". You are the only voice they have in the world. Never give up and never take no for an answer. My daughter has a very rare form of chromosone damage, it has no name because they don't name things that are rare. My sisters daughter has the same condition, and one other girl that lived in Washington State (she has passed on). Our children are severally mentally and physically handicapped. Our children are the only ones with this condition in the United States.My daughter just turned 25 and weights about 65 lbs and is about 4 ft tall. I found out early on in the world of professionals that are there to help you, that they don't like informed parents, and I'm certainly one. I interview doctors before they become my childs doctor, If they don't like that then don't deal with them cause it will be trouble in the end. You know more about your child than anyone else, you eat, sleep,and live by that child 24 - 7. You don't have to be nasty or mean (well sometimes it can get to that point). just keep yourself informed. And keep a paper trail, no matter about what if its to do with that child. You never know when you will need something in the future. To all you moms with kids that don't fit the norm "whatever that is" hang in there, good luck, smile everytime you can, and know you are never alone, you do not have a child that is only one of two known to be alive in the United States, there is information out there for you. My heart is with you all.
From one mom to another
Jeanne
Lisa that is a great picture I want to get some nice black & white shots of my son too.
Jeanne thats great advice and thanks for sharing your experience. With such a rare condition I imagine it would have been difficult to even get a diagnosis for your daughter let alone dealing with the issues such a condition brings on a day to day basis. She is in good hands though with you as her mum.
Thankfully you found someone early to listen to you. It took me years to get my son the help he needed for being tongue tied. The doctor said it was up to the dentist..dentist said up to the doctor..can't do anything without a referal of course. Heard so many times that it was something he would out grow. Finally his Kindergarden teacher started telling them that he had a speach problem. Well duh. They listened to her. Had surgery and has taken 4 yrs of speech class which is labeled part of special ed here..DS is scary smart and the special classes have caused him to miss out on being on the math and science team since they all meet during the same class period.
KUDOS to you for getting it done quicker and good luck
I am so glad to hear your story and thank goodness he is doing well!! Good for you!!
My sister's son had severe strep throat and ear infections ALL THE TIME. Doctor told her they COULD take his tonsils and adnoids out, "....but we can just let him grow out of it." She absolutely put her foot down. She cited, "Ignore the fact that I have to miss work all the time and I have to keep paying YOU every time I turn around, but MY SON IS SICK ALL THE TIME! There is NO REASON he should have to feel bad ALL THE TIME! We ARE going to fix this and we ARE going to fix this NOW!!"
Why do they think it's ok to let the child suffer like that?
And I SO agree with the above poster .... they don't like mothers who are informed. They prefer the mothers who they can pat on the head and say "there, there, don't stress your pretty little head about it."
Thanks
dueter sorry it took so long for someone to listen for your son to get the help he needed, such as shame he has to miss out on the math & science teams hopefully he will be able to join in the future.
Why do they think it's ok to let the child suffer like that?
I really don't understand that either, just makes no sense as to why a child should have to go through something that can be avoided (or at least improved)
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