Update On Medical Junk, For Those Who Read The Other Thread A Month Ago.
Lounge By Annabakescakes Updated 25 Aug 2013 , 2:18pm by MimiFix
I can understand the feeling, the crying. I am type II diabetic, but control my glucose with diet and *gasp* exercise. I have sleep apnea so use a C-Pap at night. A few years ago I spent several days in ICU with pulmonary blood clots and almost didn't make it. After two episodes I was put on warfarin for life. I already was watching my carb intake, monitoring my fat intake, and now the kicker: Limit soy products and green leafy vegetables which are high in vitamin K. All the years of mom's words in my memory of "eat your vegetables, they're good for you".... Yeah, what's left when even your vegs, which I love, are restricted? Fortunately, I can still eat them---I just have to monitor my blood with a monthly test and adjust the Coumadin. I just can't zone out on fresh spinach from my bountiful garden and glut on frequent harvests. Moderation, that's the key. (I still hate that word.)
So I know the desire to cry when I thought all was taken from me. You know, some people eat to live, but I live to eat!
Jan
Oh, Jan, that does suck! One on my favorites are potatoes, and they are on the restricted list, so I can sympathize with you. I can't imagine getting diabetes, too, on top of it all. Soy is restricted, and those little beans are in everything! I LOVE food, and enjoy cooking and eating, now I will have to be the dishwasher, I suppose.
I dont have your symptoms. I do have (I'm going to spell it wrong) vasovagal syndrome. It causes me to faint, randomly. My point is, get a second opinion. Don't give up yet. I went to my primary doc after my second "spell" in two weeks, bc it happened at work and I had to go to the ER via ambulance. They
This was my 100th opinion, I don't really have the energy for 101. I have been seeing Dr.'s since I was a teen, and a ward of the state, any the only things I heard of were depression, and anemia, and IBS. Now I feel like I finally have some answers, even though I don't like them.
I feel for you! I found out about my celiac a couple of years ago. It is amazing how it affects your body. The damage to the small intestines causes your body to be unable to absorb many nutrients. (For me the biggie was vitamin B12 and also vitamin D and some others in the B group.) Removing all gluten is hard! But it will be worth it.
Just a tip for you from what I have found. Even the flour dust in the air when baking can end up being swallowed. (It's gross, but the way our noses are designed to protect the lungs is to trap particulates in mucous that ends up being swallowed.) So I wear a mask when I am baking. It is a pain in the butt, but it keeps me able to work.
I have so, so much I would like to tell you about, but I don't want to overwhelm you. I have been pretty close to where you are and I want to tell you there is light at the end of the tunnel. You will feel like yourself again!
You will not overwhelm me, please feel free to send me a message, or call me if you want. I would love someone to commiserate with. I'll PM my phone number, if you want it. Do you have GF recipes, as well? I mean just to eat? I just ate my first meal today because we were low on groceries already, and there was just nothing in the house I could eat, besides for dried up carrots, and freezer burned hamburger, and frozen blueberries! I had microwaved chicken and microwaved California mix with lots and lots of salt, since I couldn't use butter.
I'll get masks too, I don't want to swallow booger batter, lol.
He is from www.BodyLogicmd.com You should check it out. I was impressed...
Yeah, I screamed a few bad words after I licked batter off a spoon today... remembering I can't eat it the split second after I ate it.
No, it really isn't, and I need to look into more answers and have more questions, too. I learned a lot, but I still have to see my PCPhys about things, too.
Thanks, I need a chat, again! I had such a nice time chatting with you, but remember the phone works both ways... :-)
I really wish hugs could cure you Anna.... I'll offer some just in case :-) Is there any way you can teach or even better run training for other bakeries- your portfolio would certainly get you some business! You might be able to earn more for the same time spent working that way??
I will keep baking. It has been the only thing I wanted to do for the past 20 years. I will try to bake more GF, and wear a mask, if I have to, to keep from inhaling. We spent so much money on our bakery, I will keep going, and I am so looking forward to feeling better and getting more done! Hugs are always more than welcome, especially cyber hugs, since I am not a big touchy feely person, haha.
Anna, make this a positive thing You have just gotten the opportunity to broaden you baking horizons by catering to the many who are gluten intolerant and can provide them with the specialty cakes they need. This will expand your business if you market it correctly! and once you get your symptoms under control you will feel great and able to take on more orders.
Just hold your head up and keep on going. YOU WILL MAKE IT!!!
I have a few GF recipes I developed from other recipes that were nasty, and I love to provide baked goods for people who can't eat wheat, I just didn't want to be one of them, KWIM? :-) Looking forward to taking on more and not passing out from it!
Anna, I'm so sorry. It really isn't fair. I don't have medical advice but you have my support and thoughts of well wishes. You have to get well for you and your family - your children are still so young. The better medical shape you are in now will be a big advantage as you get older. I do like the idea of a second opinion but I also know that it's not always in the cards. Good thoughts for you!
Jeanne
Life isn't fair! It seems like I have drawn the short straw more often than not, but I am relieved to know what I can do. I don't feel helpless and lazy anymore, and I will be so happy to start feeling well and I am going to smother my kids in attention when I do :-) And support is just as needed as medical advice! Thank you!
Anna, two words. Leptin reset. PM me. It's changed my life. True story-I started out 350 lbs and I lost 4 lbs in 3 days. I have crushed the sugar dragon and cravings are no more. Reset the leptin and generally the thyroid fixes itself. You need to get on an iodine protocol ASAP. PM me.
Forgot to add that most women in the US are iodine deficient which results in thyroid issues. Most women have an undiagnosed thyroid problem.
Edited again to say that being sick will ALWAYS cost more than being healthy.
I will PM you, since you told me twice! And I have heard about iodine being needed, and I have some, since you can get everything online, it is just getting up to go take it, WHEN I remember to, that is the problem! It was recommended to me to take it, too. The Dr has a "good iodine" he wants to sell me, but like I stated, I am going to take the stuff I can afford, and when I get more $, I will get the good stuff.
Anna my heart goes out to you. My only advice is if you are unsure then get a second opinion, seek the advice of a nutritionist and be very wary of non medical people giving advice based on their own symptoms that may be similar but not necessarily the same or related to yours. Faulty medical advice (even when well meaning) can cause more problems than it solves.
I am not unsure, I stated earlier that I have been seeking answers for quite some time, and I will run everything past my Dr. before I do anything! Thank you.
Sounds exciting and delicious... But not as good as a blueberry scone :-( I do need to take iodine, I just had to get what I could at the time. I do research a lot, too. I almost feel like an invalid, so surfing "LiveStrong" and such is what I do! I really knew he was going to tell me thyroid, and gluten-type things. I didn't anticipate so many other things as well, though.
Anna, I feel badly about the "oh, poor me" tone of my last post. That certainly was not what you needed to hear. I am so glad for these subsequent upbeat messages. Let me add my own: Yes, chin up and take all the positive feedback that comes. Your past story paints a picture of a very strong young woman who has overcome so many challenges and is the better for them. You will find a way and turn this into something positive, I just know it. Meanwhile, if my thoughts and mental hugs would help, you would definitely be feeling them at this moment.
And happy birthday to the twins!
Jan
YOU STOP IT RIGHT NOW! It IS what I need to hear, because this does suck, it is overwhelming, and I do love mental hugs and positive words, but I also want to know other people have problems too, and it isn't the end of the world. It is good to know I am not suffering all alone. And I actually wrote a note to myself in my phone a LONG time ago suggesting to myself to only do GF baking, since their is a shortage of good GF baked goods, so maybe I will now! I NEED to find a way to make my Chocolate Chip Cookie Dough cupcakes GF. I shove them in my mouth like chips, they are so good!
Paleo baking reminds me of making mud pies* in the dog run at my grandma's house, when I was 4.
*Mud pies may contain doo-doo.
That was one of the books the Dr recommended for me. I'll get it for Kindle, or else I will lose it in my clutter!
:(
Still, its better to know, even if it's not what you want to hear, than to go on not knowing and getting worse. (I'm awesome at pep talks, eh!?)
Pinterest is an amazing source for paleo and gluten free diets, I had to go on a high protein and less than 15g of carbs a day thing for health reasons, so I just went paleo. I still sort of hate it, but it gets a lot easier. Since it's so popular right now there are a ton of blogs and such about how to do it on a budget, and recipes.
Dude, it's real, and that is always appreciated! ALWAYS! I barely look at pintrest, in fact , I forget about it unless a client sends me their inspiration board. I don't even know how to look for stuff like that on there.
For some reason it did not post all of what I had written. Long story short, I had fainted twice in two weeks. After seeing my primary doc and being referred to several specialists, a cardiologist being one of them (I am 26) my primary went thru all of my results, everything was basically normal but HE suggested I have a different general practitioner look at them as well. The other doc wanted me on like 6 different meds per day and suggestion I try to get on disability... WHAT?! NO! So I went back to my primary doc with the suggestions from the other doc and we went thru everything that could be causing me to faint. I was a long visit but I was then diagnosed with vasovagal syndrome and am not on any medications at all.
What I am trying to say is get a second or even third opinion. Clearly you have health issues and yes, your diet may need to change. I personally feel like doctors are diagnosing Celiac disease left and right lately. I am no a medical professional by any means. I am just suggesting you are properly diagnosed, which may take several doctors, but I feel that is much better than "lets see how this works."
Hope you feel better.
Yeah, my heart is messed up too. He wants me to exercise and eliminate stress to keep from having a heart attack. I often get this tight swollen feeling in my chest, and I feel like my heart is being pumped up like a tire.
I agree disability is often ridiculous! I just watched a video with this really good looking guy who was born with no arms and still drives and has a full time job. I used to live in a county where half the people got a "crazy check" every month, because they didn't want to work. They all had 2 arms, too!
Anna- I would strongly discourage you taking PILL form Progesterone.
It has been banned in some countries. I was so low in Progesterone they thought I was perimenopausal at 31
So see if you can do a cream. Its also cheaper! The progesterone for most people makes them gain weight. I had an adverse effect while
on it and it made me lose weight I was so sick. The cream was fine for me. Right now in the medical field Progesterone is a hot topic. Half believe you need it
and the other half don't. So good luck with a second opinion on that one.
On the bright side at least you know what is wrong. I know it sucks but just think of all the time you'll get to spend with your kids! No more sleeping like crazy!
I'd kill for an answer myself. Also sometimes with diet change and hormones the body corrects itself. Kinda like a reset button so you might not have to take all this stuff for forever.
It is Bioidentical progesterone. And he said that sometimes he recommends the pill, other times the cream, depends on what else is going on, and he chose the pills, so I will trust him for now. And I have every single side effect I could have for having low progesterone, so I am guessing the people who say you don't need don't have low progesterone, or they don't have a good looking husband that goes to bed alone every night, or because their b**chy attitude has driven everyone away. And they must be able to sleep all day, and don't care about the spare tire around their middle.
Check out Body Logic, if you haven't.
Yes ma'am, I am! And I am going to this this diet crap, even if it kills me!
It is Bio identical progesterone. And he said that sometimes he recommends the pill, other times the cream, depends on what else is going on, and he chose the pills, so I will trust him for now. And I have every single side effect I could have for having low progesterone, so I am guessing the people who say you don't need don't have low progesterone, or they don't have a good looking husband that goes to bed alone every night, or because their b**chy attitude has driven everyone away. And they must be able to sleep all day, and don't care about the spare tire around their middle.
Check out Body Logic, if you haven't.
Mine was Bio identical in pill form. It just jacked me up. I agree with you on needing progesterone! If god gave it to me there has to be a reason its there. I just don't get those doctors.I'm just pre-warning you to their different attitude of the hormone. You might have two doctors for each of the problems. For instance I just ignore my Gyno and get my meds from my Practitioner.
Also not sure if you had your testosterone checked but that definitely will help with the ***/tired thing. You also don't need to get the pill injections if you don't want a capsule in your butt. They are about $1300 to insert the capsule and $300 every 5 months to refill. I just give myself a shot in liquid form of the same stuff they give the guys its just in liquid form. Only costs me $35 for a 3 month supply if you are looking to save money. The pill injection form can be a combination of all the hormones which is helpful. However it just was too much money for me.
AAnna I only just read this and I wanted to say how much I feel for you, what a tough situation to be put in but we all know that if anyone can make it through this, it's you!
Also you've given me some things to think about, I'm struggling with some of the same issues as you know.
Giving up carbs will get easier, as you find more ways to replace them with veggies or the few grains you are allowed. The good news is that more and more products are now GF, and more affordable as time goes by.
I'm thinking of you!
... doctors are not nutritionists. You might want to investigate some of that nutritional advice in more depth. That seems like a rather long and somewhat random list of things to avoid.
Totally agree. Most doctors don't understand nutrition basics. Once you have a definitive diagnosis, a nutritionist can help you resume a more inclusive diet. Hope you're feeling better soon.
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