Update On Medical Junk, For Those Who Read The Other Thread A Month Ago.

Lounge By Annabakescakes Updated 25 Aug 2013 , 2:18pm by MimiFix

Annabakescakes Posted 23 Aug 2013 , 3:02am
post #1 of 37

In this thread, I talked about some symptoms I was having http://cakecentral.com/t/761001/omg-i-need-to-be-a-little-engrossed-in-cc/75

 

I went to the specialist today because my Dr. told me it was depression and prescribed Wellbutrin, which "would also help with weight gain", PSHAW! This is what is wrong with me:

 

My progesterone is LOW, and I swear I have every single symptom

http://www.livestrong.com/article/84741-progesterone-deficiency-symptoms/

 

My Cortisol crashes in the morning, (his words) which makes me so tired I can't cope. And then skyrockets at night. 

 

HDL cholesterol is low, while triglycerides are high, to the point of indicating I am in "pre-diabetes" 

 

I have a high risk for heart attack and stroke indicated from some "cardio crp" levels.

 

My liver is a mess, and he wants me to go back to my PCPhys and get a scan on it. It is due to an autoimmune disorder.... biliruben fine, but alkaline phosphatase, ast, and alt are HIGH, especially that last one. (whatever it is)

 

Vitamin D is 1/3 of what it should be. 

 

I have no (.01) of TSH, but normal thyroid levels, which means hyperthyroidism.

 
My thyroid peroxidase antibodies are >1000 (how much greater? Who knows??) which is a result of autoimmune disorder.....
 
Autoimmune disorder? What's that, you say? FLIPPING, FREAKING, FRACKING CELIAC DISEASE!!! Beautiful, huh? I own a bakery. Eating cake and bread and pancakes and biscuits and cookies and gravy, and breaded chicken destroyed my liver. It is just so damn unfair I don't know whether to cry, vomit, or just laugh. Good thing the live repairs it's self, right? 
 
Now, I have to take progesterone ($?), 6 supplements that cost $300 a month, and eliminate everything but fruit, vegetables and meat from my diet. Not to mention we can't afford to eat like that. Wheat of some sort is at every meal to help fill us up, because the food budget is a bit thin, after bills. But if i can feel better, I can take more orders, which is more money, yay! 
 
Now I must go bake a cake for my twins' birthday. 

36 replies
Norasmom Posted 23 Aug 2013 , 3:19am
post #2 of 37

When you change your diet, your life will change for the better.  It sucks to give up wheat, I feel for you!  My dad does not have Celiac, but he has a gluten sensitivity.  He was exhausted and arthritic (but super happy!) at my wedding 8 years ago.  When he went gluten-free, his symptoms disappeared.  I cannot even tell you what a difference it has made.  Also remember, you may not be able to eat wheat but your children still can, so maybe that will help with the food bill if it's only you eating differently.

 

As for the $300 supplements, that's the worst....I hope that once you start to feel better you won't need as many.

yortma Posted 23 Aug 2013 , 3:27am
post #3 of 37

If you have a low TSH and high thyroid peroxidase antibodies, you may very well have Grave's disease,  which is an  autoimmune disease that can stimulate the thyroid causing it to overproduce.  It can also affect the eye area in some individuals. I hope it all gets sorted out and treated properly.

Annabakescakes Posted 23 Aug 2013 , 3:36am
post #4 of 37
Quote:
Originally Posted by yortma 

If you have a low TSH and high thyroid peroxidase antibodies, you may very well have Grave's disease,  which is an  autoimmune disease that can stimulate the thyroid causing it to overproduce.  It can also affect the eye area in some individuals. I hope it all gets sorted out and treated properly.

Oh, he did mention that too, but he wrote it on the paper that he put back in the file, so i don't have it on me. Add one more to the list! But yeah, my eyes bug out, and get so sore. 

milkmaid42 Posted 23 Aug 2013 , 3:37am
post #5 of 37

I don't have any medical advice to offer, or personal experience with what you are going through. I just want to give my support for the raw deal you've been dealt. A baker who's gluten intolerant. Boy, that sucks. It would appear from all the gluten-free recipes that are showing up all over that you are definitely not alone in your situation. 

Good luck to you and I certainly hope your symptoms subside when you start your new eating plan. It will feel good to feel good again.

 

Hugs, 

Jan

Annabakescakes Posted 23 Aug 2013 , 3:38am
post #6 of 37
Quote:
Originally Posted by Norasmom 

When you change your diet, your life will change for the better.  It sucks to give up wheat, I feel for you!  My dad does not have Celiac, but he has a gluten sensitivity.  He was exhausted and arthritic (but super happy!) at my wedding 8 years ago.  When he went gluten-free, his symptoms disappeared.  I cannot even tell you what a difference it has made.  Also remember, you may not be able to eat wheat but your children still can, so maybe that will help with the food bill if it's only you eating differently.

 

As for the $300 supplements, that's the worst....I hope that once you start to feel better you won't need as many.

If I had the $300 for the supplements, I expect they would help, lol. My boys have the same tiredness and achy bones I always did at their age. We are going to try to get them on it too. Tonight at dinner my boys and I had hamburgers with no buns, their choice. 

yortma Posted 23 Aug 2013 , 3:41am
post #7 of 37
Quote:
Originally Posted by Annabakescakes 

Quote:
Originally Posted by yortma 

If you have a low TSH and high thyroid peroxidase antibodies, you may very well have Grave's disease,  which is an  autoimmune disease that can stimulate the thyroid causing it to overproduce.  It can also affect the eye area in some individuals. I hope it all gets sorted out and treated properly.

Oh, he did mention that too, but he wrote it on the paper that he put back in the file, so i don't have it on me. Add one more to the list! But yeah, my eyes bug out, and get so sore. 

Bulging, sore red eyes is also a classic sign of Grave's disease.  You should see an endocrinologist if you haven't already. There are treatments for Grave's disease.  

Annabakescakes Posted 23 Aug 2013 , 3:42am
post #8 of 37
Quote:
Originally Posted by milkmaid42 

I don't have any medical advice to offer, or personal experience with what you are going through. I just want to give my support for the raw deal you've been dealt. A baker who's gluten intolerant. Boy, that sucks. It would appear from all the gluten-free recipes that are showing up all over that you are definitely not alone in your situation. 

Good luck to you and I certainly hope your symptoms subside when you start your new eating plan. It will feel good to feel good again.

 

Hugs, 

Jan

I need to start trying and practicing recipes, but he said I should never eat beans, legumes, potato, tomato, corn, soy, rice, and a couple other things, as well. Literally meat, vegetables and fruit. I can't make a cake with that. 

 

I came home and ate my last chocolate cupcake. And now I suddenly need to cry about it, lol. 

Annabakescakes Posted 23 Aug 2013 , 3:47am
post #9 of 37

Thanks for the kinds words, and such. If anybody is on bioidentical progesterone from San Diago, please let me know how much this costs for 40, 100 mg tablets a month. (1 for 14 days, and 2 for 14 days. )

milkmaid42 Posted 23 Aug 2013 , 3:54am
post #10 of 37

I can understand the feeling, the crying. I am type II diabetic, but control my glucose with diet and *gasp* exercise. I have sleep apnea so use a C-Pap at night. A few years ago I spent several days in ICU with pulmonary blood clots and almost didn't make it. After two episodes I was put on warfarin for life. I already was watching my carb intake, monitoring my fat intake, and now the kicker: Limit soy products and green leafy vegetables which are high in vitamin K. All the years of mom's words in my memory of "eat your vegetables, they're good for you".... Yeah, what's left when even your vegs, which I love, are restricted? Fortunately, I can still eat them---I just have to monitor my blood with a monthly test and adjust the Coumadin. I just can't zone out on fresh spinach from my bountiful garden and glut on frequent harvests. Moderation, that's the key. (I still hate that word.)

So I know the desire to cry when I thought all was taken from me. You know, some people eat to live, but I live to eat!

 

Jan

just4fun26 Posted 23 Aug 2013 , 10:33am
post #11 of 37

AI dont have your symptoms. I do have (I'm going to spell it wrong) vasovagal syndrome. It causes me to faint, randomly. My point is, get a second opinion. Don't give up yet. I went to my primary doc after my second "spell" in two weeks, bc it happened at work and I had to go to the ER via ambulance. They

as you wish Posted 23 Aug 2013 , 11:14am
post #12 of 37

AI feel for you! I found out about my celiac a couple of years ago. It is amazing how it affects your body. The damage to the small intestines causes your body to be unable to absorb many nutrients. (For me the biggie was vitamin B12 and also vitamin D and some others in the B group.) Removing all gluten is hard! But it will be worth it. :) Just a tip for you from what I have found. Even the flour dust in the air when baking can end up being swallowed. (It's gross, but the way our noses are designed to protect the lungs is to trap particulates in mucous that ends up being swallowed.) So I wear a mask when I am baking. It is a pain in the butt, but it keeps me able to work. I have so, so much I would like to tell you about, but I don't want to overwhelm you. I have been pretty close to where you are and I want to tell you there is light at the end of the tunnel. You will feel like yourself again!

as you wish Posted 23 Aug 2013 , 11:17am
post #13 of 37

AI would also just like to say, doctors are not nutritionists. You might want to investigate some of that nutritional advice in more depth. That seems like a rather long and somewhat random list of things to avoid.

sixinarow Posted 23 Aug 2013 , 12:27pm
post #14 of 37

I hope you can get some good advice from as you wish and some others that have similar issues. I'm so sorry Anna, but I DO know that you can overcome this..even if you have to cuss it the whole way! icon_wink.gif

DeliciousDesserts Posted 23 Aug 2013 , 12:29pm
post #15 of 37

AThat's just not fair.

I will say taking synthyroid changed my life.

Anna, put down the cupcake & pick up the phone.

Crazy-Gray Posted 23 Aug 2013 , 12:52pm
post #16 of 37

I really wish hugs could cure you Anna.... I'll offer some just in case :-) Is there any way you can teach or even better run training for other bakeries- your portfolio would certainly get you some business! You might be able to earn more for the same time spent working that way??

Rosie93095 Posted 23 Aug 2013 , 1:07pm
post #17 of 37

Anna, make this a positive thingicon_smile.gif You have just gotten the opportunity to broaden you baking horizons by catering to the many who are gluten intolerant and can provide them with the specialty cakes they need. This will expand your business if you market it correctly! and once you get your symptoms under control you will feel great and able to take on more orders.

 

Just hold your head up and keep on going. YOU WILL MAKE IT!!!

JWinslow Posted 23 Aug 2013 , 1:09pm
post #18 of 37

Anna, I'm so sorry.  It really isn't fair.  I don't have medical advice but you have my support and thoughts of well wishes.  You have to get well for you and your family - your children are still so young.  The better medical shape you are in now will be a big advantage as you get older.  I do like the idea of a second opinion but I also know that it's not always in the cards.  Good thoughts for you!

 

Jeanne

AnnieCahill Posted 23 Aug 2013 , 1:09pm
post #19 of 37

Anna, two words.  Leptin reset.  PM me.  It's changed my life.  True story-I started out 350 lbs and I lost 4 lbs in 3 days.  I have crushed the sugar dragon and cravings are no more.  Reset the leptin and generally the thyroid fixes itself.  You need to get on an iodine protocol ASAP.  PM me.

 

Forgot to add that most women in the US are iodine deficient which results in thyroid issues.  Most women have an undiagnosed thyroid problem.

 

Edited again to say that being sick will ALWAYS cost more than being healthy.

cazza1 Posted 23 Aug 2013 , 1:29pm
post #20 of 37

Anna my heart goes out to you.  My only advice is if you are unsure then get a second opinion, seek the advice of a nutritionist and be very wary of non medical people giving advice based on their own symptoms that may be similar but not necessarily the same or related to yours.  Faulty medical advice (even when well meaning) can cause more problems than it solves.

AnnieCahill Posted 23 Aug 2013 , 1:43pm
post #21 of 37

Leptin reset is a whole foods, grain-free diet.

 

Iodine is impossible to overdose on and is critical for the functioning of many organs in the body. 

 

You have nothing to lose by researching.

tdovewings Posted 23 Aug 2013 , 2:09pm
post #22 of 37

Hang in there Anna! You'll find away to turn this into something amazing! You always do! Please get the thyroid checked out ASAP. I have Graves Disease (hyperthyroidism) and I went through a period where all my systems and blood work was out of whack before I got the thyroid under control. It's amazing how one little small element of the body can affect so much!  It took me a while before I could get an appointment for an endocrinologist, they are booked up months in advance, so start soon.

milkmaid42 Posted 23 Aug 2013 , 2:39pm
post #23 of 37

Anna, I feel badly about the "oh, poor me" tone of my last post. That certainly was not what you needed to hear. I am so glad for these subsequent upbeat messages. Let me add my own: Yes, chin up and take all the  positive feedback that comes. Your past story paints a picture of a very strong young woman who has overcome so many challenges and is the better for them. You will find a way and turn this into something positive, I just know it. Meanwhile, if my thoughts and mental hugs would help, you would definitely be feeling them at this moment.

And  happy birthday to the twins!

 

Jan

jason_kraft Posted 23 Aug 2013 , 2:56pm
post #24 of 37

AIt sounds like the doctor is recommending a paleo diet...paleo baking is not easy but it is still possible to make pretty good baked goods, usually with coconut flour or almond flour.

Here are some recipes: http://www.thepaleomom.com/paleo-baked-goods

AnnieCahill Posted 23 Aug 2013 , 3:02pm
post #25 of 37

Yep, that's the leptin reset.  The timing and quantity of protein makes it significant.

 

I totally agree about paleo baking, although my cravings are gone so I don't do it.

cakefat Posted 23 Aug 2013 , 3:05pm
post #26 of 37

oh wow..that's a lot of process at once. I'm sorry! I

 

I'm reading this book right now called "Wheat Belly"..it's very interesting...you should check it out.  A lot of this book may relate to you.

xx

scrumdiddlycakes Posted 23 Aug 2013 , 3:17pm
post #27 of 37

:(
Still, its better to know, even if it's not what you want to hear, than to go on not knowing and getting worse. (I'm awesome at pep talks, eh!?)

 

Pinterest is an amazing source for paleo and gluten free diets, I had to go on a high protein and less than 15g of carbs a day thing for health reasons, so I just went paleo. I still sort of hate it, but it gets a lot easier. Since it's so popular right now there are a ton of blogs and such about how to do it on a budget, and recipes.

just4fun26 Posted 23 Aug 2013 , 4:23pm
post #28 of 37

For some reason it did not post all of what I had written. Long story short, I had fainted twice in two weeks. After seeing my primary doc and being referred to several specialists, a cardiologist being one of them (I am 26) my primary went thru all of my results, everything was basically normal but HE suggested I have a different general practitioner look at them as well. The other doc wanted me on like 6 different meds per day and suggestion I try to get on disability... WHAT?! NO! So I went back to my primary doc with the suggestions from the other doc and we went thru everything that could be causing me to faint. I was a long visit but I was then diagnosed with vasovagal syndrome and am not on any medications at all.

 

What I am trying to say is get a second or even third opinion. Clearly you have health issues and yes, your diet may need to change. I personally feel like doctors are diagnosing Celiac disease left and right lately. I am no a medical professional by any means. I am just suggesting you are properly diagnosed, which may take several doctors, but I feel that is much better than "lets see how this works." 

 

Hope you feel better.

smittyditty Posted 23 Aug 2013 , 9:21pm
post #29 of 37

Anna- I would strongly discourage you taking PILL form Progesterone.

It has been banned in some countries. I was so low in Progesterone they thought I was perimenopausal at 31

So see if you can do a cream. Its also cheaper! The progesterone for most people makes them gain weight. I had an adverse effect while

on it and it made me lose weight I was so sick. The cream was fine for me. Right now in the medical field Progesterone is a hot topic. Half believe you need it

and the other half don't. So good luck with a second opinion on that one.

On the bright side at least you know what is wrong. I know it sucks but just think of all the time you'll get to spend with your kids! No more sleeping like crazy!

I'd kill for an answer myself. Also sometimes with diet change and hormones the body corrects itself. Kinda like a reset button so you might not have to take all this stuff for forever.

Elcee Posted 24 Aug 2013 , 1:58am
post #30 of 37

Hi, Anna, I'm sorry you're going through all of this. You must be feeling overwhelmed right now. I am absolutely convinced, though, that once you've had a chance to process all of this you will figure it all out and do what you need to do to get healthy again.

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